Oh! The irony….
The first stick today at the infusion center was in a vein just below my wrist staight down from my right thumb. It stung like crazy. The nurse, a very happy, kind young woman in her 20’s had to move the IV to the left side of my left arm. I was well hydrated, but for some reason, I was extra sensitive to the pokes today.
After the premeds of solumedrol (a steroid for inflammation reduction) and Benadryl (for prevention of possible allergic reactions to the medication) were given and when the 30-minute wait time was over, it was time to start infusing the half dose of a new medication my neurologist prescribed because of the increased MS symptoms I was experiencing and the three new lesions seen on my recent MRI. The stress of the past year has definitely taken a toll on my body.
Ocrevus is a medication which is initially infused twice, 14 days apart, and then as an infusion every six months to reduce the symptoms and number of future MS relapses. There is not a cure for MS, but the medication can be helpful in slowing the progression of the disease.
My arrival time was 9AM this morning. Riding in the elevator in silence with my husband to the second floor was not intentional. The closer we got to the infusion center the more nervous I felt. The elevator doors opened and we walked straight ahead and took the jog to the right. Behind the glass door that we walked through into the infusion center, sat a very bubbly blonde girl behind the desk She was eager to help us feel welcome. I recognized her voice as the one who scheduled the appointment with me and called me “Sweetie” before hanging up the phone last week. Someone younger than yourself should NEVER call you “Sweetie.” It feels disingenuous and condescending, in my opinion. She, however, was very friendly and did help us feel very welcome.
The room that was going to be mine for the next 7.5 hours was inviting and even had a homey feel to it. I was directed to sit in the big dark brown leather recliner. My husband sat in a very nice cloth wing-backed chair on the other side of the end table placed between the two chairs. On the wall in front of us was a large TV hanging above a side board with drawers where the nurses accessed the necessary supplies. It was the same width as the TV. The TV was displaying a beautiful cozy sitting room with a fireplace and all kinds of St. Patrick’s Day decore dispersed about the room which gave a bit of a wimsical feel to the coziness.
The normal medical history questions were asked and answered. When the nurse asked me, “How do you sleep at night?” I could not help my response, “With my eyes closed.” She laughed like she knowingly had that coming. All of the nurses were kind, helpful and reassuringly stated they have very few people who have reactions to the medication.
Well, I had a bit of reaction, so the medication was stopped for 30 minutes and restarted at a lower dose. I started to feel shaky so the nurse brought a string cheese and an apple juice for me. By then, it was late enough that she let me choose a lunch to be delivered by Uber, which was paid by the infusion center. That was a nice perk of choosing them, (if you can call it “choosing” when they were the only one that was in-network with our insurance).
The remainder of the infusion ran smoothly. The nurses checked my vitals every 30 minutes. My blood pressure, oxygen, and pulse were good the entire time. At 4:30PM we walked out toward the reception desk. I stopped in the hallway where I let the nurse know that I was experiencing some double vision in my left eye. She said if it got worse or if I started to have new symptoms that I should go to the ER. One of the other nurses will give me a call tomorrow to check on how I am doing. When that call comes, I hope to answer while at work, since I am feeling better tonight. It is nearly 11:30PM, and I am wide awake. It comes as no surprise because of all the napping I did today, thanks to the Benedryl.
ChatterLei 